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In 2021, John Gourley & Zoe Manville of the band Portugal. The Man learned their daughter Frances had a one-in-a-billion genetic disease called DHDDS. Kids with DHDDS and other neurodegenerative diseases experience the mental and physical decline associated with elder diseases like Alzheimer’s and Parkinson’s. 90% of childhood rare diseases, including Frances’, are without an FDA approved treatment or cure. Frances Changed My Life funds research and development of lifesaving treatments for Frances and more than 150M kids around the world living with rare diseases.
For over 15 years, Playing For Change Foundation (PFCF) has helped youth rise up through their own culture, using music education to create social and economic change in areas that are economically poor, but culturally extremely wealthy. With 50+ locations across 19 countries and growing, the positive impact of PFCF is extraordinary.
